I got a very exciting invitation yesterday (actually discovered it in my SPAM folder… eek!). There’s a yearly event (now in it’s third year), called Science Foo Camp. In short, it’s a multidisciplinary unconference focused on innovation in science and technology. Doing a Connotea search on scifoo gives you a whole host of chatter about the first two meetings, some of which has me in a lather. I’m particularly excited about this opportunity, because it might present me with the forum to talk about some of the deeper challenges with OpenMRS and serving the underserved as we grow our community. Perhaps I’ll also have a forum to talk about the challenges related to clinical informatics in general: data normalization and aggregation, community-wide decision support, using clinical data retrospectively for pharmacovigilance and quality improvement, and evolving from clinic-centric records into personal health records, etc.
Someone was nice enough to send me a link to an online recording of a presentation I gave in Nairobi around the OpenMRS Concept Collaborative (OCC). Here it is for your listening and viewing pleasure:
For a couple of weeks now, I’ve felt particularly good about our progress on OpenMRS, as we’ve *finally* made good on our objective of bringing coders from developing countries into the fold. Honestly, up until recently, I’ve always felt a little disingenuous about our mission as an “open source medical record system for developing countries”, when a large majority of the actual development was taking place in the US and Europe.
Now, we can proudly point to a number of examples of some real, honest to goodness African and developing country coders making real contributions.
For example, take Ime Asangansi, an extremely bright and energetic clinical officer based out of Nigeria who has recently begun a project with me and Tim Cook to create a working prototype that will produce and consume OpenEHR archetypes. This kind of work is not for the faint of heart, believe me, and it’s *inspiring* personally to see someone so passionate about the opportunity to work on this in earnest as one of the inaugural OpenMRS Internship Program’s interns.
Then there’s Sam Ndichu, a young Kenyan who is conceptualizing and leading coding efforts to build a patient tracking module for OpenMRS. These ideas were informed through some work he’s done in the past with clinical environments in Kenya. Ben practically gushes about this guy’s talent and potential, and I know how difficult it is to impress Ben. 😉 I’m excited to see what he’ll come up and hope that he’ll step up and take on a leadership role in our public discussion areas.
I’m also excited to see two developers, Abyot Asalefew and Anthony Muyepa take on the strategically important priority of creating a strong interface between OpenMRS and DHIS. I think that this work has a ton of value outside of trickling patient-level data up to an aggregate level reporting system such as DHIS: it’ll likely be the foundation for communicating indicators to the outside world in general. We’re also very pleased to see the DHIS team taking a very active role in their mentorship.
Finally, last but definitely not least, how could I make a blog post without mentioning Daniel Kawiya? Back when Burke and I really put our heart and full commitment into OpenMRS, I think one of the big questions and criticisms of our approach was our assumption that our success was tied to Africans and other developing country contexts taking hold of this project and making it theirs through their active, passionate involvement. We were told by many that this was too unrealistic of an expectation given the circumstances in many of these environments. In retrospect, I even caught myself wondering from time to time if we were too ambitious in our aims?
Daniel has demonstrated to us all in some remarkable ways that we were all wrong in those assumptions. When Burke and I first met Daniel back a couple of years ago, that symbolized for me a turning point for this project. It seems like at almost every meeting or get together that we have in Africa, that Daniel knocks us all out of our seats with a remarkable bit of code, or insight as to how to make OpenMRS a better piece of software. A couple of months ago, for example, he independently wrote code which enables XForms functionality in OpenMRS, and just sprung it upon us at an international meeting. He’ll likely single-handedly demonstrate to the rest of the community how we can move forward with alternatives to InfoPath for data collection. This is likely the most requested feature from end users.
He’s in fact become so invested in the OpenMRS work that he’s taken it on as his full time endeavor recently. I can’t tell you how important of a milestone this was for me personally, because in Daniel I see the future of health information for Africa. His humble, yet commanding presence is such an empowering example to the likely thousands of other Africans who are wondering to themselves: “do I have what it takes to make a difference in the HIV crisis?”. His commitment to this work definitely helps gets me out of bed to work on the project. 🙂
We’re committed to seeing more and more new developers come and take part in this initiative. I want you all out there to make the guys who have gotten this project started obsolete! Nothing would make me prouder than for OpenMRS to evolve to a place where I need to step aside, as it becomes more and more led by those who will be using it on a daily basis. So, from my perspective, these examples are another milestone towards this goal.
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Burke and I were asked some time ago to present our work on OpenMRS as an example of social transformation at a national conference hosted by our institute. The first thing that went through my mind (besides a large “wha?”), was that I detest giving talks about such wishy-washy, touchy-feely topics. Given that we were asked by our direct mentors and peers to do this, however… we agreed.
Regenstrief’s spiritual leader, Tom Inui, likely sensed our sentiments about giving this talk, and gave me a book as a gift:
He told me that the book described our story and perhaps might help us with further work on OpenMRS. I gave it a shot, and in short, I highly recommend it. It reads easily, and it’s inspiring.
What it taught me:
- Trying to do good things in the world starts with good intentions and isn’t typically associated with deep introspection and planning
- Most people that have succeeded in changing the world feel as if they’re constantly flying by the seat of their pants
- If people readily identify with your cause, then you very well might be onto something… don’t ignore this
I have to tip my hat to Tom and Brad Doebbling (the organizer of the conference we presented at), as they forced us to do something that isn’t in our nature: be introspective and attempt to describe how we’ve evolved OpenMRS to where it is today. Burke talks more about the presentation we gave in his blog post, but I keep coming back to an idea I had as we were in preparation: the open source approach to software development is an extremely potent way to enable social transformations.
The way in which I’ve seen the larger open source community converge on OpenMRS is nothing short of staggering from my perspective, and I can’t help but think that there’s some important lessons in this that can and should be reused by others. I’ll have a lot more to say on this in the weeks to come, as I share some exciting news about the growth of the community.
On a completely different topic, I just got a copy of the new Radiohead album, In Rainbows. Um, wow. A clear standout track: Bodysnatchers. Go download it now! Yes, they’ve actually released the album online, and allow you to decide for yourselves how much to pay for it. Brilliant.